If you or someone you love has received a diagnosis including dementia, you already know. Every resource you look at or listen to will tell you dementia is not a disease, but rather a "cluster of symptoms" that will erase life's memories. Any dementia educator will tell you about the stages, what to expect, and advise you to seek out as much information as possible. While this journey will still be challenging, the process below will help tremendously.
The Initial Devastation
The first stage following a dementia diagnosis is often devastation. It's natural to feel overwhelmed by grief, loss, sadness, and even anger. Please know you don't have to pretend to be strong or have everything under control. Embracing your feelings can be the first step toward healing.
Relief Through Diagnosis
Once the initial shock subsides, relief often takes its place. Knowing the diagnosis helps eliminate the fear of the unknown. This clarity allows you to seek appropriate help and resources, such as support groups, specialized medical care, and educational materials about dementia. Connecting with organizations like the Alzheimer's Association can provide guidance and practical assistance, making the path forward more manageable.
Discovery Phase
The discovery phase is a critical stage of gathering information about the specific type of dementia affecting your loved one. Each dementia case is unique, and learning about the disease can help you better understand what to expect.
Managing Information Overload
It's easy to become overwhelmed by how much information is available. Take your time, pace your research, and take breaks when needed. Not everything you learn will apply to your situation, so focus on what's most relevant.
Positive Discoveries
Despite the difficulties, life will continue to offer moments of humor, love, and joy. You'll learn more about your loved one's life experiences and stories, enriching your relationship unexpectedly. By focusing on creating new memories, you can find ways to celebrate the present and cherish the past.
Determination and Resilience
Channel your energy into providing your loved one with the best quality of life. This might involve finding a senior living community, depending on your family's situation. It's important to start this process early, as making decisions about care under pressure can be stressful and may limit your options. By planning ahead, your family can carefully evaluate various communities and services to ensure a smooth transition when the time comes.
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Resources and Support
You can't pour from an empty cup, and the same principle applies to your own well-being. It's equally as important to care for yourself as a caregiver as it is caring for your loved one. Whether it's setting aside moments for relaxation, engaging in hobbies you love, or simply enjoying a quiet cup of tea, prioritizing your own health helps you better support those who rely on you.
Numerous organizations offer valuable resources and support like the Alzheimer's Association, who provides a wealth of educational materials that cover everything from understanding the disease to managing daily care. Their helplines are also available to offer immediate assistance and guidance, ensuring families have access to the help they need at any time.
We also recommend connecting with other caregivers. Sharing stories and advice with others who truly understand what you're going through can lighten the emotional load and provide fresh perspectives. Paula Harder, our Vice President of Resident Programs and Memory Care, facilitates a Virtual Caregiver Support Group on the third Monday of each month. This group provides guidance and creates a welcoming and supportive space where caregivers can openly discuss challenges, share coping strategies, and learn from each other's journeys.
Interested in Joining the next Virtual Caregiver Support Group? RSVP Today!